Alex's beautiful Mum, Katie, emailed me saying she really needed photos taken of her darling boy, as he was about to begin an extreme high dose of steriods (5 times the normal adult dose), in an attempt to stop him having many seizures a day. The effects of the steroids would be extreme fluid retention, and she was desperate to have something to hold onto of her gorgeous boy, without all the side effects of the drugs. Alex was born with autism and West Syndrome - a catastrophic type of childhood epilepsy that was diagnosed at 12 weeks of age. My heart sunk and tears rolled down my cheeks as I read Katie's email about what she and Alex go through on a daily basis.
This is why I do what I do. Photographs are more than a piece of paper, or something to brighten up our computer screens. Photographs are a way to hold onto something that once was, or to capture real personality and mannerisms. They tell the story of someone's life - with memories to be passed down generations. For Katie, these photographs serve as a very precious reminders of her wee boy, before the side effects hit.
When I met Alex, Katie, and Sue (Alex's grandma), on the day he began his first dose of intense steriods, I was blown away by the strength they have, and how perfect Alex is in so many ways. He is such good looking wee boy, with gorgeous shaggy hair, soft skin and a wee round face that tugs at your heart strings.
Thanks so much Alex, Katie and Sue, for playing with me that afternoon! My thoughts and prayers are with you all xoxox